What can we learn by listening to people affected by dementia — and to the organisations responding?
Dementia Impact brings together direct insight from people and families affected by dementia with research into how organisations are responding.
Our research looks beyond what should happen to understand what people are experiencing, what organisations are actually doing and what others can learn from both.
What 813 Family Dementia Caregivers Told Us
The experiences organisations supporting dementia families need to understand.
More than 800 family caregivers shared their experiences of caring for someone living with dementia.
Their responses reveal what families are dealing with, what can remain unseen and where organisations seeking to support them need to understand their experience better.
Trust Before the Decision
What 515 family dementia caregivers told us about trust, overwhelm and seeking professional help.
Families often need professional help long before they are ready to ask for it.
This research examines what can influence trust before that decision — and how useful, supportive communication can affect whether someone feels more comfortable taking the next step.
Football & Dementia
Emerging good practice from English football.
Across English football, clubs are finding different ways to support supporters and families affected by dementia.
We spoke directly with clubs already doing this work to understand what they're doing, what they're learning and what other football clubs and sporting organisations could learn from their experience.
Faith Communities & Dementia
How churches and synagogues are responding to dementia.
For many people, a faith community is an important source of connection and support. But what does meaningful dementia support within a faith community actually look like?
Drawing on conversations with churches, synagogues and others involved in this work, the report looks at approaches already being used, the challenges involved and lessons for communities wanting to do more.
What does your organisation need to understand?
Our published research starts with questions.
What are families experiencing?
What are organisations doing?
What's working?
What's missing?
What could be done differently?
We also work directly with organisations that have dementia-related questions of their own — using caregiver insight, research and analysis to help them understand the issue and decide what to do next.
Research in progress
Dementia & the Workplace
What happens at work when an employee is also caring for someone living with dementia?
Dementia Impact is speaking with employers in the UK and United States to understand how organisations are responding — what support exists, what appears to help and where there may be opportunities to do more.
Does your organisation have experience to share?
We're interested in speaking with employers already providing support and those beginning to think about their approach.