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What happens when we listen closely to the expectations family dementia caregivers place on themselves?

This Dementia Impact report draws on 813 contributions from family caregivers supporting spouses, partners, parents, relatives and friends living with Alzheimer’s disease and other forms of dementia.

Their experiences reveal a recurring tension: caregivers are already navigating exhaustion, uncertainty and the demands of supporting someone they love, while many also feel they should cope better, stay patient, put themselves last and keep going regardless.

The report challenges the idea of the “perfect caregiver” and explores what caregivers repeatedly told us actually helps — including understanding, reassurance, practical guidance, support and connection.

The report explores:

• Why so many caregivers feel they should be able to cope alone

• The guilt and self-judgement that can come with struggling

• Why constantly putting a loved one first can leave caregivers depleted

• Why information alone is not always enough

• The support caregivers say makes a meaningful difference

• What families, healthcare professionals, care providers, employers and organisations can learn from their experiences

Download your free copy below.